Users

The following series of Users indicates those groups and/or organisations that have or will in the future have an interest in the findings of the project. In some cases they are already in contact with the project teams.

Each User has been classified (in italics) according to one of the following types:

Department of Health NHS agency/trust
Clinical practitioners International agencies
Professional associations and societies Patient groups/lobbies
Patient charities Specific commissions
Parliamentary groups Private sector firms
Academic groups/associations Regulatory agencies
Public health agencies Other

This allows for clustering of groups according to type and will facilitate dissemination at the right level, targeted for a specific audience. It also enables us to see where there are the same, or very similar Users of different projects who might be interested in outputs from project other than that to which they were originally associated.

This list of Users is by no means complete. Please check back regularly for updates

Phase I


L218 25 2001
Prof JW Abraham
University Of Sussex

Regulation Of Innovative Pharmaceuticals In The EU And US: A Comparative analysis

Center for Drug Evaluation and Research FDA International agencies
NHS R&D Programme NHS agency/trust


L218 25 2005
Prof B Salter & Ms M Jones
University Of East Anglia

Reforming The Governance Of Human Genetics: The Politics Of Public Trust

Nuffield Trust Academic groups/associations
Parliamentary Office for Science and Technology Parliamentary groups


L218 25 2007
Dr B Woods, Mr N Watson & Prof D Mackenzie
University of York & University Of Edinburgh

A Historical Sociology Of The Wheelchair

Muscle Power Political/campaigning organisation
Spinal Injuries Association Self-help group


L218 25 2008
Dr D Armstrong, Dr J Ogden, Prof S Wessley & Prof R Lilford
Kings College London & Birmingham University

Quality Of Life As An Innovative Health Technology


L218 25 2009
Prof PA Atkinson, Dr AJ Clarke, Dr M Worwood, Dr R Hutton & Dr R Ravine
Cardiff University & University Of Wales College Of Medicine

Genetic Screening For Susceptibility To Disease: The Case Of Haemochromatosis


L218 25 2010
Dr S Cohn & Ms J Bichard
London: Goldsmith's College

The Challenge Of Recent Neurology To Conceptions Of Mental And Physical Illness

Depression Alliance Patient groups/lobbies
Mental Health Foundation Patient groups/lobbies
Mind Patient charities


L218 25 2011
Dr P Flowers, Mr JCG Imrie, Prof GJ Hart & Mr M Davis
Glasgow Caledonian University & Royal Free University

Transitions In HIV Management: The Role Of Innovative Health Technologies

Body Positive Patient charities
The Terrence Higgins Trust Patient charities


L218 25 2013
Prof J Hewison, Dr J Green, Prof HS Cuckle, Prof RF Mueller & Mr J Thornton
Leeds University & St James' University Hospital

Social And Ethnic Differences In Attitudes And Consent To Prenatal Testing

Antenatal Results and Choices (ARC) Patient charities
DoH National Screening Committee Department of Health
Midwifery, Bradford Royal Infirmary Clinical practitioners
Midwifery, St Jame's University Hospital Clinical practitioners
National Childbirth Trust Patient groups/lobbies
Obstetrics and Gynaecology, Bradford Royal Infirmary Clinical practitioners
Obstetrics, The General Infirmary at Leeds Clinical practitioners
St Mary's Hospital Clinical practitioners


L218 25 2022
Dr G Hanlon, Dr A O'Cathain, Dr D Luff, Dr D Greatbatch & Dr T Strangleman
University Of Nottingham, University Of Sheffield & London: King's College

NHS Direct: Patient Empowerment Or Dependency

NHS Direct NHS agency/trust
NHS Executive Department of Health
Royal Holloway University, Dept. of Management Academic groups/associations


L218 25 2023
Ms J Heaton, Ms J Noyes, Dr P Sloper & Dr R Shah
University Of York

Technology And Time: Home Care Regimes And Technology-Dependent Children

Baxter's Healthcare Corporation Private sector firms
Care Co-ordination Network Professional associations and societies
Chesterfield and North Derbyshire Royal Hospital Clinical practitioners
Department of Health Department of Health
Department of Health Children's National Service Framework Department of Health
Martin House Hospice Clinical practitioners
Medical Devices Agency Regulatory agencies
NHS Executive North West NHS agency/trust
Quality Protects, Social Services Inspectorate Other
St James' Hospital, Leeds Clinical practitioners
The Patient's Forum Patient groups/lobbies


L218 25 2036
Dr S Franklin, Prof A Rutherford & Prof P Baude
Lancaster University & Guy's King's & St Thomas'

Definitions Of Genetic Knowledge & Pre-Implantation Genetic Diagnosis: An Ethnography

British Sociological Association Human Reproduction Study Group Academic groups/associations
Centre for Life, Newcastle Academic groups/associations
Centre for Research on Families and Relationships, Edinburgh University Academic groups/associations
CHILD - National Infertility Support Network Patient groups/lobbies
Cystic Fibrosis Trust Patient charities
Department of Health Department of Health
Genetic Interest Group Patient charities
Human Fertilisation and Embryology Authority Regulatory agencies
Human Genetics Commission Department of Health
Jennifer Trust Patient charities
Progress Educational Trust Patient groups/lobbies
UK Huntington's Disease Association Patient charities


L218 25 2038
Dr FE Griffiths, Prof E Green, Dr GA Bendelow, Dr KC Backett-Milburn, Dr M Tsouroufli & Dr D Thompson
University Of Warwick, University Of Teeside & University Of Edinburgh

IHT's At Women's Midlife: Theory And Diversity Among Women And 'Experts'

South Bank Women's Centre NHS agency/trust


L218 25 2039
Dr FJ Henwood, Dr SME Wyatt & Dr A Hart
University Of East London & University Of Brighton

Presenting And Interpreting Health Risks And Benefits: The Role Of The Internet

Brighton and Hove Health Authority NHS agency/trust
Brighton Health Care NHS Trust, Dept of Urology Clinical practitioners
British Menopause Society Patient groups/lobbies
GaP Infomedia Ltd Private sector firms
Park Crescent Surgery, Brighton Clinical practitioners
Sussex Postgraduate Medical Centre Clinical practitioners
The Health Centre, University of Sussex Clinical practitioners
The Impotence Association Patient groups/lobbies


L218 25 2042
Prof GA Lewando-Hundt, Prof J Sandall, Dr K Spencer, Prof R Heyman & Dr C Williams, Ms R Grellier
University of Warwick, Kings College London, City University & Barking and Havering Hospitals NHS Trust

Social Implications Of One Stop First Trimester Prenatal Screening

Royal College of Midwives Professional associations and societies


L218 25 2043
Prof DJ Mason, Prof EM Ettorre, Dr GJ Lankshear & Prof KR Greene
University Of Plymouth

The Technological Management Of Childbirth: Risk, Empowerment And Accountability

LSA Responsible Midwifery Professional associations and societies
National Childbirth Trust Professional associations and societies


L218 25 2044
Dr M Michael & Dr N Brown
Goldsmith's College & University Of York

Xenotransplantation: Risk Identities And The Human / Non Human Interface

RSPCA Headquarters Other
The Wellcome Trust Professional associations and societies


L218 25 2045
Prof JV Pickstone & Dr DJ Cantor
Manchester University

Innovation, Assessment And The Hip Prosthesis

Thackray Medical Museum Other
University of Birmingham Academic groups/associations
Cancer Genetics Interest Group Patient charities
Genetics Interest Group Patient charities
Institute of Medical Genetics, Cardiff Academic groups/associations
Macmillan Cancer Relief Patient charities
National Assembly for Wales Parliamentary groups
Tenovus Patient charities


L218 25 2046
Dr LF Prior, Dr J Gray, Prof D Hughes & Dr R Pill
Cardiff University, University Of Wales College Of Medicine And University Of Wales: Swansea

The Construction Of Risk Estimates In A Cancer Genetics Clinic


L218 25 2047
Dr JE Seymour, Dr CM Gott, Prof D Clark, Prof SH Ahmedzai & Mr G Belamy
University Of Sheffield

Technology And Natural Death: A Study Of Older People

Age Concern Patient groups/lobbies


L218 25 2051
Dr SP Parr, Dr BL Petheram & Prof SC Byng
City University & University Of The West Of England

Inclusive Internet Technologies For People With Communication Impairment

Aphasia Nottingham Patient charities
British Aphasiology Society Academic groups/associations
British Computer Society (Disability Group and Human Computer Interaction) Professional associations and societies
British Council of Disabled People and local groups and associations Patient groups/lobbies
British Psycological Society Academic groups/associations
Communications Forum Patient groups/lobbies
Connect Patient groups/lobbies
Different Strokes Patient groups/lobbies
Foundation for Assistive Technology Patient groups/lobbies
DDA, the DTI particularly, and the Home Office Parliamentary groups
Cochrane consortium Academic groups/associations
Royal College of Speech and Language Therapists Professional associations and societies
Speakability Patient groups/lobbies
The Benefits Agency Parliamentary groups
W3 consortium (web accessibility) International agencies


Phase II


L218 25 2053
Dr P Tovey, Dr S Mason, Dr K Atkin & Dr S Rashid
University of Leeds & Sir Ganga Ram Hospital, Lahore

The Mediation Of CAM In And By Cancer User Groups, Charities And Informal Networks In The UK & Pakistan

East House Other
Royal College of Nursing Professional associations and societies
Those planning and providing services in the UK: health authorities and PCTs, and in Pakistan (health authorities) NHS agency/trust


L218 25 2055
Prof D Clark, Dr J Seymour, Dr B Noble, Dr M Winslow, Prof H ten Have, Dr M Meldrum & Dr S Paz
University of Sheffield, University Medical Centre Nijmegenh(NL) & University of California, Los Angeles

Innovations In Cancer Pain Relief: Technologies, Ethics And Practices

CancerBACUP Patient charities
World Health Organisation Programme on Cancer Control International agencies


L218 25 2056
Prof S Metcalfe, Mr A James, Dr A McMeekin & Dr R Ramlogan
University of Manchester

Distributed Innovation Processes And The Uneven Growth Of Medical Knowledge

Central Manchester PCT NHS agency/trust
Manchester Health Authority NHS agency/trust


L218 25 2057
Dr N Fox & Dr A O'Rourke
University of Sheffield & Northern General Hospital, Sheffield

Consumerism, Information And Drug Prescribing Governance

NHS Executive, Trent NHS agency/trust
NHS Information Authority NHS agency/trust


L218 25 2058
Mr A Faulkner, Dr J Kent & Dr D FitzPatrick, Ms I Geesink
University of Wales, Cardiff, University of West of England & University College Dublin

Medical Device Governance: Regulation Of Tissue Engineering In The United Kingdom And European Union

Association of British Health-Care Industries Professional associations and societies
Bath Royal United Hospital NHS Trust NHS agency/trust
CEN (European Committee for Standardisation) Healthcare Forum International agencies
DePuy International Private sector firms
EUCOMED (EU med device industry) Professional associations and societies
Institute of Materials Professional associations and societies
Joint NICE/Medical Devices Agency group with remit on emerging technologies Regulatory agencies
Medical Devices Agency Regulatory agencies
National Horizon Scanning Centre Regulatory agencies
NHS HTA Patient groups/lobbies
NHS National Patient Safety Agency NHS agency/trust
NHS Purchasing and Supplies Agency NHS agency/trust
SCMPMD Scientific Committee on Medicinal Products and Medical Devices (EU Consumer Health committee) International agencies
University of Bath, Department of Chemical Engineering Academic groups/associations
University of Glamorgan, Tissue Viability Research Group Academic groups/associations


L218 25 2059
Dr A Kerr, Dr R Tutton & Dr S Cunningham-Burley
University of York & University of Edinburgh

Transformations In Genetic Subjecthood


L218 25 2061
Dr S Nettleton, Professor R Burrows, Professor I Watt, Dr S Muncer & Prof B Loader
University of York, University of Durham & University of Teesside

Children, Parents And The Management Of Chronic Illness In The Information Age

Diabetes Care Centre NHS agency/trust
Health Development Agency NHS agency/trust


L218 25 2064
Dr J Cullen, Dr K Ehrich, Ms J Corlyon, Ms P Slovik & Ms C Lyons
The Tavistock Institute, London

The Role And Effectiveness Of Collaborative Knowledge Systems In Health Promotion And Health Support

Department of Health R&D Division Department of Health
European Commission International agencies
NHS NHS agency/trust
TeleWest Private sector firms
Tremblay Consulting Private sector firms


L218 25 2067
Prof C May, Dr M Mort, Dr T Williams & Dr F Mair
University of Newcastle upon Tyne, Lancaster University, University of Manchester & University of Liverpool

Telemedicine And The 'Future Patient'? Risk, Governance And Innovation


L218 25 2082
Dr S Cohn & Ms J Bichard
Goldsmiths College, University of London

Neuroscience Promises: Current & Future Applications of Brain Imaging Technology

Depression Alliance Patient groups/lobbies
Mental Health Foundation Patient groups/lobbies
Mind Patient charities


L218 25 2087
Dr P Martin, Dr P Nightingale & Prof H Rothman
University of Nottingham, University of Sussex & Nottingham Business School

The Impact Of Genomics On Innovation In The Pharmaceutical Industry

Association of the British Pharmaceutical Industry Professional associations and societies
AstraZeneca Private sector firms
Biotechnology Industry Association Professional associations and societies
Department of Health Department of Health
European Commission, Life Sciences & Technologies International agencies
European Parliament International agencies
GlaxoSmithKline Private sector firms
House of Lords Parliamentary groups
Medical Research Council Academic groups/associations
Office of Science and Technology, DTI Parliamentary groups
Pfizer Private sector firms
Wellcome Trust Academic groups/associations