Projects started in 2012

Risk, safeguarding and personal budgets: exploring relationships and identifying good practiceNovember 2012 - April 2014

This study explored the relationships between safeguarding and personalisation. Safeguarding is about enabling people to maintain independence, well-being and choice, as well as the right to live a life free from abuse and neglect. Personalisation is about tailoring services to the needs of the end user.

Loneliness and social isolation among older people in rural North YorkshireNovember 2012 - September 2013

This piece of work builds on a survey about loneliness and social isolation among older people in rural North Yorkshire, carried out by North Yorkshire Older People's Partnership Board (NYOPPB) in 2009.

Living with inflammatory bowel disease: the experiences of adults of South Asian origin (the LISA project)November 2012 - May 2014

The primary aims of the study are to describe what living with Inflammatory Bowel Disease is like for South Asian adults, including their experiences as health service users, and to understand whether ethnicity impacts on this experience and, if so, how.

Vision rehabilitation services: increasing the evidence baseOctober 2012 - June 2014

This project will explore the evidence base for the different service models that are being used and identify key features to be tested in future evaluation studies.

Fuel poverty and disabilitySeptember 2012 - February 2015

Taking on and taking over: physically disabled young adults and their care and support arrangements (the TOTO project)July 2012 - April 2014

This study focused on physically disabled young adults and those with chronic, complex or degenerative health conditions (but without learning disabilities). It identified what support was needed and provided for them to achieve their aspirations for choice and control over their support arrangements.

Supporting carers of people with dementiaJuly 2012 - June 2013

The project will look at the increasing numbers of people who live with impaired cognition or communication. These groups have traditionally been without a ‘voice’ in research about their lives and needs, particularly in health services research.

Improving Care for people with Dementia: development & initial feasibility study for evaluation of Life Story work in dementia careJuly 2012 - March 2015

To carry out the development and initial feasibility stages of evaluation of a complex intervention – life story work – for people with dementia.

Evaluation of 'Life Story' intervention: Feasibility studyJuly 2012 - March 2015

Everybody has a life story. These are rich and varied and can be used to communicate who we are to the people around us. People with dementia sometimes need help to communicate their histories and identities, and 'life story work' might provide a way for them to do this more easily.

The TraCCS project: Transforming community health services for children and young people who are ill: a quasi-experimental evaluationJune 2012 - June 2015

Current policy for children and young people who are ill advocates for care to be provided in the community and close to the patient and family. In response to this, health communities in England are redesigning their services to include comprehensive Children's Community Nursing (CCN) teams that can deliver this type of care. The purpose of this project is to evaluate the impact of introducing CCN teams.

Growing up and living with ataxia-telangiectasia (A-T)April 2012 - September 2012

Ataxia-telangiectasia (A-T) is a very rare, complex, progressive genetic condition which affects physical coordination and control. The A-T Society is concerned that current understandings of young people’s lives are primarily based on parents’ accounts. They commissioned this project in order to hear directly from young people about their experiences of growing up and living with A-T.

Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisabilityFebruary 2012 - May 2013

The identification of suitable outcome measures will improve the evaluation of integrated NHS care for the large number of children affected by neurodisability, and has the potential to encourage the provision of more appropriate and effective health care. This research sought to appraise the potential of patient-reported outcome measures (PROMs) for children and young people with neurodisability.

Personal budgets, direct payments and self-directed support for people with severe mental health problemsJanuary 2012 - December 2013

There is limited evidence of the effectiveness of personalised care in mental health services. This project will carry out initial research to inform the development of a full evaluation programme of personalised care (comprising a personal budget or direct payment and self-directed support), subject to feasibility testing, to provide gold standard evidence of its effectiveness.