Profile
Biography
My ESRC funded studentship explores the social world of the Mental Capacity Act 2005. In going beyond the ‘letter of the law’ I explore what actually happens in courtrooms, local authority meeting rooms, advocacy offices, individual homes, I analyze how the range of people involved in the everyday practices of the Mental Capacity Act 2005 construct and reproduce the personal and social worlds of decision-making within this revolutionary legal framework, and aim to find out how those who inhabit this world actually go about dealing with the burning social questions that lurk beneath the neat, tidy black-on-white letter of Mental Capacity Law.
Such questions include:
- (How) can we speak on behalf of another individual? (How) can we represent their personal views, wishes, feelings and beliefs? And (how) do decisions made in this way both reflect and shape the social identity of that individual?
- (How) do themes of social and group-based oppression impact on and shape discussions concerning the ‘Best Interests’ of an individual?
- Are all decisions created equal? Can decisions concerning medical treatment and social care or welfare be made using the same framework? (How) do these social worlds overlap?
Research
Overview
Who decides when you can’t?
Call for Participants
Are you a person with a disability/disabled person, who is actively involved in the pursuit of disability rights?
Might you be willing to talk with a researcher from the University of York about your views and experiences of accessing health and social care, about the right to accept/refuse medical treatment, and what happens if you lose the capacity to make such decisions for yourself?
I am looking for:
- Self-identifying people with disabilities/disabled people who are actively involved in the pursuit of disability rights (e.g., but not limited to – academic research, awareness-raising, training, campaigning, organization/membership of user-led organizations, advocacy, online social media activism)
- Aged 18 or over and living in England or Wales
- Willing to participate in an interview (part of my PhD research), focusing on the rights to access/refuse medical treatments, and on what happens if you lose the capacity to make such decisions for yourself.
If you are interested in taking part, or for more information, please contact
Gill Loomes – gl739@york.ac.uk
Thank you
Teaching
Postgraduate
Gillian tutors and supervises postgraduate students on Distance Education programmes in Autism Studies at the University of Birmingham (to the level of M.Ed).
She also regularly lectures on residential study weekends as part of these programmes, teaching on topics of advocacy, education and employment in the context of autism.