Partnership gives a voice to pressure ulcer patients
Posted on 31 January 2012
A new survey aims to give patients and carers a voice in the search to find the most effective prevention and treatment for pressure ulcers.
Pressure
ulcers – pressure sores or bed sores - are hard-to-heal wounds that are painful
for patients and distressing for both them and their carers. A wide range of
interventions are available for their treatment and management, but evidence of
their effectiveness remains limited.
Research funds are precious so it is
essential that we use them wisely
Professor Nicky Cullum
The James
Lind Alliance Pressure Ulcer Priority Setting Partnership (JLAPUP), which
includes health scientists from the Universities of York and Manchester, is
conducting the survey. It is part of a project to identify and prioritise the
questions about prevention and treatment that matter most and to encourage
research in these priorities.
JLAPUP needs
as many patients, carers and clinicians as possible to take part in its survey.
The
partnership is funded by a National Institute for Health Research (NIHR)
Programme Grant, as part of the Wounds Research for Patient Benefit Programme
(WRPB) at Leeds Community Healthcare NHS Trust in collaboration with the
Department of Health Sciences at York and the University of Manchester’s School of Nursing, Midwifery and Social
Work.
The survey
can be completed on-line or on paper, with all responses being included in a
process to find the top ten priorities.
Sally Crowe,
of the James Lind Alliance and Chair of the Partnership, said: “Pressure ulcers
are distressing and disabling for many people in the UK and also pose
significant treatment challenges and costs to the NHS. So this is an area that needs new
perspectives and solutions, especially from people that live with, or are at
risk of, pressure ulcers, and those who treat and care for them. The James Lind
Alliance looks forward to working with a wide variety of people and groups on
this important project.”
Dr Mary
Madden, from the University of York’s Department of Health Sciences, said: “Though
there are no patient-led groups specifically representing the interests of
people with or at risk of pressure ulcers, many other groups include people
affected by them. We are inviting these and allied clinician and carer groups
to join JLAPUP to help with ‘uncertainty gathering’ – highlighting gaps in
knowledge - and prioritisation. Current members include the Multiple Sclerosis
Society, Spinal Injuries Association and Action on Elder Abuse.”
Professor Nicky Cullum, from the University of
Manchester’s School of Nursing,
Midwifery and Social Work, who leads the Wounds Research for Patient
Benefit research programme, said: “Research funds are precious so it is
essential that we use them wisely to address the uncertainties that matter most
to patients, carers and the clinicians who deliver care. This James Lind
partnership is focused on ensuring we get these priorities right.”
For further
information or to take part in the survey visit www.jlapressureulcerpartnership.co.uk or contact Richard Morley on 01904
321105.
Notes to editors:
-
The Wounds for Patient Benefit programme presents
independent research commissioned by the National Institute for Health
Research (NIHR) under its Programme Grants for Applied Research funding
scheme (RP-PG-0407-10428).
- The National
Institute for Health Research provides the framework through which the
research staff and research infrastructure of the NHS in England is
positioned, maintained and managed as a national research facility. The
NIHR provides the NHS with the support and infrastructure it needs to
conduct first-class research funded by the Government and its partners
alongside high quality patient care, education and training. Its aim is to
support outstanding individuals (both leaders and collaborators), working
in world-class facilities (both NHS and university), conducting leading
edge research focused on the needs of patients. www.nihr.ac.uk
- Programme Grants for
Applied Research are awards made by the National Institute for Health
Research (NIHR) to fund high quality research that addresses areas of
priority or need for the NHS. Programme Grants award up to £2 million over
three to five years to the best applied research teams from the NHS and
academia working together to provide evidence to improve health outcomes
in England through the promotion of health, the prevention of ill health
and optimal disease management (including safety and quality). Programme
Grants typically fund programmes of interrelated, high-quality research
projects and associated infrastructure that are designed to deliver
findings that can be directly and practically applied in the relatively
near future, for the benefit of patients and the NHS. www.pgfar.nihr.ac.uk
- The James Lind Alliance
Pressure Ulcer Partnership (JLAPUP) is a partnership of organisations
representing patients, carers and clinicians. Its aim is for patients,
carers and clinicians to work together to:
• identify important areas where further research is needed to
improve care;
• assemble and publish these in the Database of
Uncertainties about the Effects of Treatments (UK DUETs) which publishes treatment
uncertainties from patients, carers, clinicians, and from research
recommendations, covering a wide variety of health problems www.library.nhs.uk/duets/
• decide which of these research
questions are most important.
A list of the most important research questions
will then be published and provided to organisations that fund research about
pressure ulcer treatment and prevention.
More information is available at: www.jlapressureulcerpartnership.co.uk or follow the JLAPUP on Twitter at
www.twitter.com/JLAPUP
- The James Lind Alliance is funded
and supported by the Medical Research Council and the National Institute
of Health Research. More
information about the James Lind Alliance is available at
www.lindalliance.org.
- The Department of Health Sciences at the University
of York is large and multidisciplinary, offering a broad range of taught
and research programmes in the health and social care field, including
nurse education (for which it was ranked the top department in the country
for nursing education, by the 2011 Times Good University Guide). It aims
to develop the role of scientific evidence in health and healthcare
through high quality research, teaching and other forms of dissemination.
In the recent national assessment of research quality, the University was
rated equal first for its Health Services Research and fourth for its
Nursing and Midwifery research. Visit www.york.ac.uk/healthsciences