Young people and families of children with life-limiting and life-threatening conditions have been actively involved in the Research Centre since its launch event in January 2017.
In 2019, we embarked on a co-designed public engagement project with teenagers and young adults with life-limiting conditions to involve them in the Centre’s research in a way that is meaningful to them. There are more details and a short summary of this project available here.
For the 2021 Martin House Research Centre conference, Naveed Hafeez produced a video that explained why his involvement with the Centre has been such a positive experience for him:-
His powerful reflections were a highlight for a number of attendees and set the tone for the entire conference.