Health Sciences
Academic Publications
2024
2024
- Abbott, J., Fraser, L.K. & Jarvis, S. Inequalities in emergency care use across transition from paediatric to adult care: a retrospective cohort study of young people with chronic kidney disease in England. Eur J Pediatr (2024). https://doi.org/10.1007/
s00431-024-05561-z -
Kammin, V., Fraser, L., Flemming, K., Hackett, J. Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis. Palliative Medicine Volume 38, Issue 3 https://doi.org/10.1177/02692163241230664
2023
2023
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Fraser, LK, Bedendo, A, O’Neill, M, Taylor, J, Hackett, J, Horridge, K, et al. ‘YourTube’ the role of different diets in gastrostomy-fed children: Baseline findings from a prospective cohort study. Dev Med Child Neurol. 2023; 00: 1–10 https://onlinelibrary.wiley.com/doi/10.1111/dmcn.15799
- Papworth, A., Bedendo, A., Taylor, J., Beresford, B., Mukherjee, S., Fraser, L., Ziegler, L. A new scale assessing the stressors and rewards of children's hospice work. BMC Palliative Care 22:136 (2023) https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01246-w
- Staff well-being in UK children's hospices: a national survey. BMJ Support Palliative Care. Aug 29 (2023)
- Mukherjee, S., Richardson, N. & Beresford, B. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks. BMC Pediatr 23, 366 (2023). https://doi.org/10.
1186/s12887-023-04151 - Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study. BMC Palliative Care Aug 16;22(1):117 (2023)
- Consultant-led UK paediatric palliative care services: professional configuration, services, funding. BMJ Support Palliative Care (2023)
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2022
2022
- Mayland, C.R., Sunderland, K.A., Cooper, M., Taylor, P., Powell, P.A., Zeigler, L., Cox, V., Gilman, C., Turner, N., Flemming, K., Fraser, L.K. Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools. Sept 2022 Palliative Medicine
- Fraser, L.K., Gibson-Smith, D., Jarvis, J., Papworth, A., Neffjes, V., Hills, M., Doran, T., Taylor, J. Polypharmacy in children and young people with life-limiting conditions from 2000-2015: a repeated cross-sectional study in England. Sept 2022. Journal of Pain and Symptom Management
- Coombes, L., Braybrook, D., Roach, A., Scott, A., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Bluebond-Langner, M., Fraser, L.K., Downing, J.,Farsides, B., Murtagh, F.E.M., Harding, R. Achieving child-centred care for children and young people with life-limiting and life-threatening conditions -a qualitative interview study. Aug 2022. European Journal of Pediatrics.
- Higginson, I.J.,
- Barker, M., Beresford, B., Fraser, L.K. Incidence of Anxiety and Depression in Children and Young People with Life-Limiting Conditions. 7 June 2022. Pediatric Research - ACCEPTED FOR PUBLICATION
- Jarvis, S., Richardson, G., Flemming, K., Fraser, L.K. Numbers, characteristics, and medical complexity of children with life-limiting conditions reaching age of transition to adult care in England: a repeated cross-sectional study [version1; peer review: 2 approved]. April 2022. NIHR Open Research
- Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Haroardottir, D., Bristowe, K., Ellis-Smith, C., Higginson, I., Gao, W., Bluebond-Langner, M., Farsides, B., Murtagh, F. E. E., Fraser, L.K., Harding, R. COVID-19: impact on pediatric palliative care 25 February 2022. Journal of Pain and Symptom Management
- Harwood, R., Yan, H., Talawila Da Camara, N., Smith, C., Ward, J., Tudur-Smith, C., Linney, M., Clark, M., Whittaker, E., Saatci, D., Davis, P. J., Luyt, K., Draper, E.S., Kenny, S.E., Fraser, L.K. & Viner, R.M.
Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: A systematic review and individual patient meta-analysis Feb 2022. eClinicalMedicine part of THE LANCET Discovery Science - Jarvis, S., Flemming, K., Richardson, G. & Fraser, L. Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions 25 Jan 2022. Pediatric Research
- Hackett, J., Heavey, E. & Beresford, B. 'It was like an airbag, it cushioned the blow': A multi-site qualitative study of bereaved parents' experiences of using cooling facilities 20 Jan 2022. Palliative Medicine
2021
2021
- Ward, J., Harwood, R., Smith, C., Kenny, S. E., Clark, M., Davis, P. J., Draper, E., Hargreaves, D., Ladhani, S., Linney, M., Luyt, K., Turner, S., Whittaker, E., Fraser, L. K. & Viner, R. M. Risk factors for PICU admission and death amongst children and young people hospitalized with COVID-19 and PIMS-TS in England durng the first pandemic year 20 Dec 2021, Nature Medicine (E-pub ahead of print)
- Sleeman, K., Cripps, R., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. & Fraser, L. K., Change in activity of palliative care services during Covid-19 pandemic: a multi-national survey (CovPall). 20 Dec 2021, Journal of Palliative Medicine (E-pub ahead of print)
- Horridge, K., Tinkler, R., Harvey, C., DeKiewiet, G., Munro, S. & Fraser, L. K. MRICS categorisation and emergency hospital admissions for children with cerebral palsy: a longitudinal, population-based study Developmental Medicine and Child Neurology. 29 Nov 2021 (Accepted/In press)
- Andy Bradshaw, Lesley Dunleavy, Ian Garner, Nancy Preston, Sabrina Bajwah, Rachel Cripps, Lorna K Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss EM Murtagh, Adejoke O Oluyase, Katherine E Sleeman, Irene J Higginson, Catherine Walshe, on behalf of the CovPall study team. Experiences of staff providing specialist palliative care during COVID-19 A multiple qualitative case study Royal Society of Medicine, 20 Nov 2021. (Accepted/In press)
- Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A. O., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. E. M., Higginson, I. & Maddocks, M. Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data 15 Nov 2021, Palliative Medicine (Accepted/In press)
- Smith, C., Odd, D., Harwood, R., Ward, J., Linney, M., Clark, M., Hargreaves, D., Ladhani, S., Draper, E., Davis, P. J., Kenny, S. E., Whittaker, E., Luyt, K., Viner, R. & Fraser, L. K. Deaths in Children and Young People in England following SARS-CoV-2 infection during the first pandemic year Nature Medicine 11 Nov 2021 (E-pub ahead of print)
- Hinde, S., Weatherly, H., Walker, G. & Fraser, L. K. What does economic evaluation mean in the context of children at the end of their life? International Journal of Environmental Research and Public Health. 11 October 2021 - Click on link for PDF article:- What does economic evaluation mean in context of children at the end of their li (PDF
, 330kb) - Bergstraesser, E., Thienprayoon, R., Brook, L., Fraser, L. K., Hynson, J., Rosenberg, A., Snaman, J., Weaver, M., Widger, K., Zernikow, B., Jones, C. & Schlogl, M. Top Ten Tips Palliative Care Clinicians Should Know About Prognostication in Children. Journal of Pallative Medicine
- Fraser, L.K. & Ziegler, L. Palliative care for teenagers and young adults - the need for more evidence. Palliative Medicine. 15 July 2021
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Jarvis, S., Richardson, G., Flemming, K., Fraser, L.K. Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data. International Journal of Population Data Science. 10 August 2021
- Fisher, V., Fraser, L.K. & Taylor, J. Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis. BMJ Support Palliative Care
- Maddison, J., Taylor, J., O'Neil, M., Cade, J., Hewitt, C., Horridge, K., McCarter, A., Fraser, L.K. & Beresford, B. Outcomes for gastrostomy‐fed children and their parents: qualitative findings from the ‘Your Tube’ study. Developmental Medicine & Child Neurology
- Jarvis, S.W., Roberts, D., Flemming, K., Richardson, G. & Fraser, L.K. - Transition of children with life-limiting conditions to adult care and healthcare use: a systematic review. Pediatric Research
- Fraser, L., Murtagh, F.E.M., Aldridge, J., Sheldon, T.A., Gilbody, S. & Hewitt, C.E. - The health of mothers of children with a life-limiting condition; a comparative cohort study. Archives of Disease in Childhood
- Papworth, A., Fraser, L.K. & Taylor, J. - Development of a managed clinical network for children's palliative care - a qualitative evaluation. BMC Palliative Care
- Hackett, J. & Beresford, B. - 'Cold Bedrooms' and other cooling facilities in UK children's hospices, how they are used and why they are offered: A mixed methods study. Palliative Medicine
- Liossi, C., Greenfield, K., Schoth, D. E., Mott, C., Jassal, S., Fraser, L. K., Rajapakse, D., Howard, R., Johnson, M., Anderson, A-K. & Harrop, E. - A systematic review of measures of breakthrough pain and their psychometric properties (Journal of Pain and Symptom Management) 22 Apr 2021, Journal of pain and symptom management
- Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall) - Catherine Walshe, Ian Garner, Lesley Dunleavy, Nancy Preston, Andy Bradshaw, Rachel Cripps, Sabrina Bajwah, Katherine Sleeman, Mevhibe Hocaoglu, Matthew Maddocks, Fliss EM Murtagh, Adejoke Oloyase, Lorna K Fraser, Irene J Higginson -International Journal of Health Policy and Management
- Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall) - Bajwah, S., Koffman, J., Hussain, J., Bradshaw, A., Hocaoglu, M., Fraser, L.K., Oluyase, A.O., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K.E., Higginson, I.J., Walshe, C., Murtagh, F.E.M. - BMJ Supportive & Palliative Care
- Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services - Bradshaw, A, Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M.B., Bajwah, S., Maddocks, M., Oluyase, A.O., Sleeman, K.E., Higginson, I.J., Fraser, L.K., Murtagh, F.E.M 1 - Palliative Medicine
- Necessity is the mother of intervention': Specialist palliative care services innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall) - Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A. O., Sleeman, K., Higginson, I. J. & Walshe, C., 16 Feb 2021 Palliative Medicine
- The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall) - Oluyase, A.O., Hocaoglu, M.B., Cripps, R.L., Maddocks, M., Walshe, C., Fraser, L.K., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F.E.M., Bahwah, S., Sleeman, K.E. & Higginson, I.J. - Journal of Pain and Symptom Management
- Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality - Coombes, L., Bristowe, K., Ellis-Smith, C., Aworinde, J., Fraser, L.K., , Downing, J., Bluebond-Langner, M., Chambers, L., Murtagh, F.E.M. & Harding, R. Quality of Life Research.
2020
2020
- Gibson-Smith, D., Jarvis, S.W. & Fraser, L.K. - Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study. Archives of Disease in Childhood
- Taylor, J., Murphy, S., Chambers, L. & Aldridge, J. - Consulting with young people: informing guidelines for children's palliative care. Archives of Disease in Childhood
- Fraser, L.K., Gibson-Smith, D., Jarvis, S., Norman, P. & Parslow, R.C. - Estimating the current and future prevalence of Life-Limiting Conditions in Children in England. Palliative Medicine
- Harris, N., Noyes, J., Fraser, L., Lapwood, S., Harrop, E., Blackburn, M., Price, J., Chambers, L., Bluebond-Langner, M., (Joint Research Group for Together for Short Lives/Association of Paediatric Pallative Medicine) - Managing and sharing research data in children's palliative care: Risks, benefits and imponderables. Journal of Advanced Nursing
- Lorna Katharine Fraser, Fliss E M Murtagh, Trevor Sheldon, Simon Gilbody, Catherine Hewitt. - Health of mothers of children with a life-limiting condition: a protocol for comparative cohort study using the Clinical Practice Research Datalink. BMJ Open
- Taylor, J., Booth, A., Beresford, B., Philips, B., Wright, K. & Fraser, L. - Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review. Palliative Medicine
- Fraser, L.K., Bluebond-Langner, M. & Ling, J. - Advances and Challenges in European Paediatric Palliative Care. Medical Sciences
- Greenfield, K., Holley, S., Schoth, D.E., Bayliss, J., Anderson, A-K., Jassal, S., Rajapakse, D., Fraser, L.K., Mott, C., Johnson, M., Wong, I., Howard, R., Harrop, E. & Liossi, C. - A protocol for a systematic review and meta-analysis to identify measures of breakthrough pain and evaluate their psychometric properties. BMJ Open
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2019
2019
- Ainscough, T., Fraser, L., Taylor, J., Beresford, B. & Booth, A. - The effectiveness of bereavement support interventions for parents of infants and children who die: A systematic review. BMJ Supportive and Palliative Care
- Taylor, J., O'Neil, M., Maddison, J., Richardson, G., Hewitt, C., Horridge, K., Cade, J., McCarter, A., Beresford, B. & Fraser, L.K. - ‘YourTube’ The Role of Different Diets in Children who are Gastrostomy Fed; protocol for a mixed methods exploratory sequential study. BMJ Open
- Barker, M.M., Bland, J.M. & Fraser, L.K. - Anxiety and Depression Prevalence in Children, Adolescents, and Young Adults With Life-Limiting Conditions—Reply. JAMA Pediatrics
- Barker, M.M., Beresford, B.A., Bland, J.M., Fraser, L.K. - Prevalence and Incidence of Anxiety and Depression Among Children, Adolescents, and Young Adults With Life-Limiting Conditions. JAMA pediatrics. 2019 Jul 8;173(9)
- Robinson, T., Brown, H., Norman, P., Fraser, L.k., Barr, B. & Bambra, C.L. - The impact of New Labour's English health inequalities strategy on geographical inequalities in infant mortality: a time trend analysis. Journal of Epidemiology & Community Health
2018
2018
- Jarvis, S.W., Livingston, J., Childs, A-M. & Fraser, L. - The impact of neurological disorders on hospital admissions for children and young people: a routine health data study International Journal of Population Data Science
- Beresford, B., Clarke, S., & Maddison, J. - Therapy interventions for children with neurodisabilities: a qualitative scoping study Health Technology Assessment. Download a summary of the report for parents here: THINC Project (PDF , 634kb)
- Booth, A.M., Maddison, J.R., Wright, K., Fraser, L.K., & Beresford, B.A. - Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents, and all those who care for them: a systematic scoping review. Palliative Medicine. 2018 Nov 8;32(10):1552-1566.
- Oostendorp, L., Rajapakse, D., Kelly, P., Crocker, J., Dinsdale, A., Fraser, L.K. & Bluebond-Langner, M. - Documentation of breakthrough pain in narrative clinical records of children with life-limiting conditions: Feasibility of a retrospective review. Journal of Child Health Care
- Jarvis, S.W., Livingston, J., Childs, A-M. & Fraser, L.K. - Outpatient appointment non‐attendance and unplanned health care for children and young people with neurological conditions: a retrospective cohort study. Developmental Medicine and Child Neurology
- Fraser, L.K. - An urgent call for collaboration: the future of research in paediatric pallative care. European Journal of Pallative Care 25(2):56-58
- Scantlebury, A., Mcdaid, C., Dawson, V., Elphick, H., Fairhurst, C., Hewitt, C., Parker, A., Spiers, G., Thomas, M., Wright, K. and Beresford, B. - Non-pharmacological interventions for non-respiratory sleep disturbance in children with neurodisabilities: a systematic review. Dev Med Child Neurol. doi:10.1111/dmcn.13972