Accessibility statement

Academic Publications

2024

2024

  • Abbott, J., Fraser, L.K. & Jarvis, S. Inequalities in emergency care use across transition from paediatric to adult care: a retrospective cohort study of young people with chronic kidney disease in England. Eur J Pediatr (2024). https://doi.org/10.1007/s00431-024-05561-z
  • Kammin, V., Fraser, L., Flemming, K., Hackett, J.  Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis. Palliative Medicine Volume 38, Issue 3 https://doi.org/10.1177/02692163241230664 

2023

2023

  • Fraser, LK, Bedendo, A, O’Neill, M, Taylor, J, Hackett, J, Horridge, K, et al. ‘YourTube’ the role of different diets in gastrostomy-fed children: Baseline findings from a prospective cohort study. Dev Med Child Neurol. 2023; 00: 1–10 https://onlinelibrary.wiley.com/doi/10.1111/dmcn.15799  
  • Papworth, A., Bedendo, A., Taylor, J., Beresford, B., Mukherjee, S., Fraser, L., Ziegler, L. A new scale assessing the stressors and rewards of children's hospice work.  BMC Palliative Care 22:136 (2023) https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01246-w  
  • Bedendo A, Papworth A, Taylor J, Beresford B, Mukherjee S, Fraser L, Ziegler L Staff well-being in UK children's hospices: a national survey.  BMJ Support Palliative Care. Aug 29 (2023)
  • Mukherjee, S., Richardson, N. & Beresford, B. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks. BMC Pediatr 23, 366 (2023). https://doi.org/10.1186/s12887-023-04151 
  • Papworth A, Hackett J, Beresford B, Murtagh F, Weatherly H, Hinde S, Bedendo A, Walker G, Noyes J, Oddie S, Vasudevan C, Feltbower RG, Phillips B, Hain R, Subramanian G, Haynes A, Fraser LK. Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study. BMC Palliative Care Aug 16;22(1):117 (2023)
  • Bedendo A, Hinde S, Beresford B, Papworth A, Phillips B, Vasudevan C, McLorie E, Walker G, Peat G, Weatherly H, Feltbower R, Hewitt C, Haynes A, Murtagh F, Noyes J, Hackett J, Hain R, Oddie S, Subramanian G, Fraser L Consultant-led UK paediatric palliative care services: professional configuration, services, funding.  BMJ Support Palliative Care (2023)
  • McLorie EV, Hackett J, Fraser LK. Understanding parents' experiences of care for children with medical complexity in England: a qualitative study.  BMJ Paediatrics Aug;7(1) (2023) https://bmjpaedsopen.bmj.com/content/7/1/e002057 
  • McLorie EV, Fraser L, Hackett J Provision of care for children with medical complexity in tertiary hospitals in England: qualitative interviews with health professionals.  BMJ Paediatrics Jul;7(1) (2023) https://bmjpaedsopen.bmj.com/content/7/1/e001932
  • Papworth A, Ziegler L, Beresford B, Mukherjee S, Fraser L, Fisher V, O'Neill M, Golder S, Bedendo A, Taylor J. Psychological well-being of hospice staff: systematic review.  BMJ Support Palliative Care April 25 (2023) https://spcare.bmj.com/content/early/2023/04/24/spcare-2022-004012.long 
  • Fields D, Fraser LK, Taylor J, Hackett J. What does 'good' palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives.  Palliative Medicine Mar;37(3):355-371 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10021114/ 
  • Barrett L, Fraser L, Noyes J, Taylor J, Hackett J. Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis. Palliative Medicine Feb;37(2):178-202 (2023) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9896294/ 

2022

2022

2021

2021 

2020

2020

2019

2019

2018

2018