Julia Hackett
Associate Professor

Profile

Biography

Julia Hackett is an Associate Professor and Public Involvement Lead in the Paediatric Palliative Care Research Group (PPCRG), within the Department of Health Sciences at the University of York. Julia also conducts research within the Candlelighters Supportive Care Research Centre (CSCRC).

Julia specialises in applying qualitative methods to explore the care and support of children, young people, and young adults living with life-threatening / life-limiting conditions and/or medical complexity, their families and the professionals who support them. She has extensive experience of palliative care, both from an adult and paediatric perspective.

Qualifications

• PhD, Health Psychology, University of Leeds
• MSc, Health Psychology, Coventry University
• BSc, Psychology/Philosophy, University of Leeds

University roles

• University of York mentor for academic, research, and teaching and learning staff

Research

Overview

Julia has particular expertise in applying qualitative methods to explore the care and support of children and young people with palliative care needs and at end of life; their families; and the health and social care professionals who support them. Julia’s research interests include families’ experiences of end of life care and bereavement support, particularly how parents are supported immediately following the death of a child and the impact of this on longer-term outcomes.

Projects

• The Role of Different Diets in Children who are Gastrostomy Fed
• Learning from parents’ experiences of palliative care for their child
• End of Life Care (EoL) for Infants, Children and Young People: a mixed methods evaluation of current practice in the United Kingdom (ENHANCE)
• Supporting the complete care of children and young people with life-threatening or life-shortening conditions, and their families: a mixed-method study of pastoral, spiritual and religious needs and support, and the role of chaplaincy services
• Understanding child and parent experiences of end-of-life care of children: a systematic review and qualitative synthesis
• The Early Days Project: parents’ experiences of the early days of bereavement and the support they receive from children’s hospices

Research group(s)

• Public Health and Society
• Martin House Research Centre

Supervision

Julia would be interested in supervising PhDs in the following areas: paediatric palliative care; bereavement; and qualitative methodology.

Julia currently supervises Vicky Kammin.

Publications

Selected publications

• Hackett, J. Helping parents process the death of their child is crucial. Together for Short Lives. 11^th May 2021. Available at: https://www.togetherforshortlives.org.uk/helping-parents-process-the-death-of-their-child-is-crucial/

Full publications list

• Julia Hackett's publications

External activities

Memberships

• Member of Leeds Bereavement Forum
• Member of Dying Matters
• Member of Content Review Panel for Bliss, for babies born premature or sick
• NIHR External peer reviewer

Invited talks and conferences

• Together for Short Lives, Practice Education Forum – invited oral presentation, ‘The early days project: bereaved parents’ accounts of extended time with their child’. Hackett, J., & Beresford, B. 2021.
• Martin House Research Centre 2^nd Biennial Research Conference – oral presentation, ‘Bereaved parents’ accounts of extended time with their child: a multi-site qualitative study of parents’ experiences of using cooling facilities provided by children’s hospices’. Hackett, J., & Beresford, B. 2021.
• European Association for Palliative Care – poster presentation, ‘Exploring the feasibility of embedding early and continuous public involvement in paediatric palliative care research: the experience of the Martin House Research Centre’. Taylor, J., Aldridge, J., Beresford, B., Hackett, J., Fraser, L. 2020.
• European Association for Palliative Care – poster presentation, ‘Cold bedrooms, cooling blankets, and cuddle cots’ provided by children’s hospices: mapping provision and practices among UK children’s hospices. Hackett, J., Aldridge, J., Fraser, L., & Beresford, B. 2019.
• European Association for Palliative Care – oral presentation, Primary Palliative Care Team Perspectives on Coordinating and Managing People with Advanced Cancer in the Community, Hackett, J., Ziegler, L, Godfrey, M., Bennett. 2019.
• National Bereavement Alliance – invited oral presentation, ‘Cold bedrooms, cooling blankets, and cuddle cots’ provided by children’s hospices: mapping practice and exploring bereaved parents’ experiences. Hackett, J., & Beresford, B. 2018.
• Maruzza Congress on Pediatric Palliative Care – poster presentation, ‘Cold bedrooms, cooling blankets, and cuddle cots’ provided by children’s hospices: mapping practice and exploring bereaved parents’ experiences. Hackett, J., Fraser, L., & Beresford, B. 2018.
• European Academy of Childhood Disability – poster presentation, Technologies which allow parents time with their child after they have died: mapping provision and practices amoung UK children’s hospices. Beresford, B., Hackett, J., Aldridge, J., & Fraser, L. 2018.
• 7^th International Seminar of the PRC and EAPC RN – poster presentation, ‘The advanced cancer trajectory: oncology health professionals’ perspectives on transitioning between services: A qualitative interview study’, Hackett, J; Godfrey, M; Bennett, M. 2017.
• Royal College of General Practitioners Annual Primary Care Conference – poster presentation, ‘The experiences of district nurses in the management of palliative care patients’, Hayward, J. & Hackett, J. 2014.
• Society for Academic Primary Care North – poster presentation, ‘Understanding the palliative care role of district nurses’, Hayward, J. & Hackett, J. 2014.
• 3^rd International Seminar of the PRC and EAPC RN – poster presentation, ‘Pain in advanced cancer: finding a common language and implications for providing effective treatment’, Hackett, J., Zielger, L., Godfrey, M., Bennett, M. 2013.
• Society for Academic Primary Care – oral presentation, ‘What do practices do to maximise QOF achievement? Two qualitative case studies using Normalisation Process Theory’, Glidewell, L., Foy, R., Hackett, J., West, R., Carder, P., Doran, T. 2013.
• Society for Academic Primary Care – poster presentation, ‘Incentives, inequalities and involvement: an evaluation of a local pay-for-performance scheme for primary care’, Hackett, J., Glidewell, L., Foy, R., West, R., Carder, P., Doran, T. 2013.
• UK Society for Behavioural Medicine – poster presentation, ‘Does a local pay-for-performance scheme successfully engage professionals?’ Hackett, J., Glidewell, L., Carder, P., Bland, P., West, R., Doran, T., Foy, R. 2012.
• UK Society for Behavioural Medicine – poster presentation, ‘Which contextual factors promote/inhibit the implementation of financial incentives in primary care?’, Glidewell, L., Hackett, J., Carder, P., Bland, P., West, R., Doran, T., Foy, R. 2012.
• UK Society for Behavioural Medicine – poster presentation, ‘Using behavioural theories to optimise shared haemodialysis care: A qualitative intervention development study of patient and staff experience’, Glidewell, L., Boocock, S., Pine, K., Campbell, R., Hackett, J., Gill, S., Wilkie, M. 2012.
• Division of Health Psychology Conference – poster presentation, ‘Who Influences you? Adolescents’ exercise and healthy eating behaviours’, Hackett, J., Jackson, C., Conner, M. 2011.