Nothing About Us Without Us: Co-producing inclusive data collections infrastructure with learning-disabled people
Posted on 28 October 2024
We are delighted to announce that Professor Kathryn Asbury and Dr Laura Fox have been awarded funding through the ESRC Transforming Data Infrastructure fund.
The Project is called: Nothing About Us Without Us: Co-producing inclusive data collections infrastructure with learning-disabled people.
The project will run until June 2025 and throughout the project Kathryn and Laura will be partnering with the charity Mencap and will be working alongside a local school.
Team Members:
Project Lead: Professor Kathryn Asbury
Co-Lead: Dr Laura Fox
Research Associate: Dr Ryann Sowden
Research Assistants: Dr Emma Jackson and Ms Kayleigh Doyle
Summary
There are around 1.5 million learning-disabled people in the UK. However, they are often
unable to access or engage with research due to the methods employed for data collection
being inaccessible, and sometimes the aims and priorities of the research itself.
This project will develop data collections infrastructure that is genuinely inclusive of
learning-disabled people. It will work with young, learning-disabled people to explore their
communication preferences and to develop accessible data collection tools. In partnership
with learning-disabled young people and their key adults, we will build an open-access
library for researchers that can support more inclusive and accessible research projects.
The project is made up of four work packages, including :
- WP1, a scoping review of the literature
- WP2, an ethnographic study to explore the communication of young people
- WP3, co-production workshops
- WP4, an online, open-source toolbox of data collection tools